Breath Taking: A Memoir of Family, Dreams, and Broken Genes with the author, Jessica Fein

Unlimited Parenting by Idaho Parents Unlimited

Episode notes

We recently welcomed Jessica Fein to Unlimited Parenting to discuss her first published work Breath Taking: A Memoir of Family, Dreams, and Broken Genes. Our conversation is a journey through the duality of the known and unknown. Jessica Fein leads us through her heartbreak and shares life lessons learned along the way.

At the age of five Jessica Fein’s daughter Dalia was diagnosed with a rare degenerative disease that would claim her life at 17. Before that moment came, and inspired by Dalia’s own irrepressible spirit, Fein and her family would discover how to live in the present when the future can’t be fixed. In this heartfelt yet clear-eyed memoir, Fein maps both her journey to becoming an adoptive mom and the roller coaster ride of loving and caring for a terminally ill child, persevering when the simple act of taking a breath ... 

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Keywords
cyshcnkids with disabilitiesiepadvocacymedicaidparent storiesparents perspectivedevelopmental disabilitygeneticsrare diseasegenesparentingparenting special needsfamilygenetic odyssey gene trackergenetic interventionfamily planningfinding the joyIdahomental healthadvocateparent training and information centermotherhoodJessica FeinBreath Taking