Demystifying NMO

by The Sumaira Foundation and Connor B Judge Foundation

Neuromyelitis Optica Spectrum Disorder (NMOSD) is a neurological autoimmune disease that causes blindness and paralysis. While NMOSD is a rare disease, autoimmune diseases are common, and so is finding scientific and medical jargon tricky to understand. In this podcast, The Sumaira Foundation and Connor B J Foundation work to simplify the science associated with NMOSD and related neuro-immune disorders, bringing together patien... Read more

Podcast episodes

  • Season 2

  • S02 E09 - Illuminating the Darkness of Pediatric NMOSD Through Storytelling - Meet Nell Choi'

    S02 E09 - Illuminating the Darkness of Pediatric NMOSD Through Storytelling - Meet Nell Choi'

    In the season finale of season 2, Chelsey reviews the topics covered and seeks feedback from listeners for season 3!To top off season 2, Demystifying NMO features Nell Choi, who shares her powerful and inspiring NMO story and opti...

    17:11
  • S02 E08 - NMOSD Diagnosis Part 2: Control What You Can

    S02 E08 - NMOSD Diagnosis Part 2: Control What You Can

    Part 2 of our conversation on the NMOSD diagnosis, we discuss the personal 'what now?' element...On the individual level, what does coping and living with a newly obtained NMOSD diagnosis look like? What can you do about it? To an...

    24:27
  • S02 E07 - NMOSD Diagnosis: Patient and Clinical Perspective

    S02 E07 - NMOSD Diagnosis: Patient and Clinical Perspective

    In this episode, host Chelsey chats with NMOSD patient and pediatric hematologist Dr. Joanna Robles about her unique perspective and experience obtaining her NMOSD diagnosis. In their discussion, they review:Important consideratio...

    29:58
  • S02 E06 - Get Nerdy: The Latest in NMOSD Research

    S02 E06 - Get Nerdy: The Latest in NMOSD Research

    Embrace your inner nerd with host and CBJF scientific advisor Chelsey (PhD immunologist) as she reviews the emerging science and hot topics recently shared at the virtual European Committee for the Treatment and Research in MS (EC...

    14:52
  • S02 E05 - Too Hot to Handle

    S02 E05 - Too Hot to Handle

    Feeling the heat this summer?! People living with NMOSD/MS can experience sensitivity to temperature, particularly extremely hot or cold temperatures. In this episode, Chelsey chats with TSF ambassadors Julie Aldridge and Alexis (...

    20:44