The Beautifully Rare Podcast

di Sam and Brynne Bish

Sam and Brynne live a Beautifully Rare life. Join them as they discuss their experiences living with complex CHD, SMA, and other unique challenges they have had to navigate as a family. If you are looking to discover a life beyond the barriers that life gives you to access one of joy and peace, this podcast is for you. They will discuss what it's like living with SMA, their journey with their son Cillian who is living with h ... 

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Episodi del podcast

  • Episode 5: 3 Things to Know and Do After a Brain Injury Diagnosis

    Episode 5: 3 Things to Know and Do After a Brain Injury Diagnosis

    E05
    27 Gennaio, 2025
    57:38

    Getting a brain injury diagnosis for your child can be terrifying. How much can they reclaim? And more importantly, what do we need to do to optimize their recovery? In Episode 5, Sam and Brynne discuss 3 things every parent new to a brain injury diagnosis should know and do that will set them and their child up for success in optimizing the most in recovery. They end by helping family and friends know how to encourage a family new to the brain injury world, and tips on mental toughness for parents through recovery and rehab. Be sure to follow for Episode 6: "How to Strengthen your Marriage Through Adversity" released next month!

  • Episode 4: Cillian's Story (Part 2)

    Episode 4: Cillian's Story (Part 2)

    E04
    31 Dicembre, 2024
    01:28:46

    Explore part 2 of Cillian's story where we chronicle our darkest days while he experiences 4 open heart surgeries, major cardiac arrest, significant brain injury, and our path down recovery. The Beautifully Rare Podcast Instagram page - @the_beautifully_rare_life To follow along with Cillian's journey on Instagram - @our_warrior_cillian Brynne's Book "My Story, My Song" - https://a.co/d/7tEAR29

  • Episode 3: Cillian's Story (Part 1)

    Episode 3: Cillian's Story (Part 1)

    E03
    18 Novembre, 2024
    01:04:00

    Join us for Part 1 of Cillian's story as we discuss what it was like receiving a life changing diagnosis, how the impossible was made possible journeying to Boston Children’s, and helpful advice for parents prepping for an extended ICU stay. This episode is sponsored by Atlantic Insurance Group. Get your FREE insurance quote using THIS LINK. To get your copy of Brynne's book referenced in this episode, use THIS LINK to purchase on Amazon!

  • Episode 2: Blessing in Disguise

    Episode 2: Blessing in Disguise

    E02
    4 Novembre, 2024
    43:28

    Curious about Brynne’s experiences in living with a neurological disease? Join Sam and Brynne on episode 2 of “The Beautifully Rare Life” Podcast where they will be talking about how she was diagnosed, difficulties she had in accepting such a diagnosis at a young age, how this difficulty led her to doing clinical research on the psychology of disability, how this led her to further higher education, her experiences being a mom to Cillian, and more! Be sure to subscribe to their podcast and follow for future updates.

  • Episode 1: New Beginnings

    Episode 1: New Beginnings

    E01
    19 Ottobre, 2024
    46:54

    In Episode 1, “New Beginnings” we interview Sam and learn about how his time in the Marines helped shape his mentality to help lead his family through a year long ICU, his path to sobriety, being an Executive Director of Heart Warrior Ministries, what it means to be Cillian's father, and more!