Episode 3: Living with Alpha-Mannosidosis – A Patient’s Perspective

These Kids Can't Wait by Erin Hubbard

Episode notes

🎙️ Host: Erin Hubbard

🎤 Guest: Sarah Forsman

📅 Release Date: 2/28/2025

🔬 Topic: Life with Alpha-Mannosidosis and the Impact of Early Treatment

Episode Overview

In this episode of These Kids Can’t Wait, host Erin Hubbard speaks with Sarah Forsman, a patient living with Alpha-Mannosidosis. Sarah shares her personal journey, including undergoing a bone marrow transplant at the age of four, and how this early intervention has shaped her life.

From navigating the challenges of a rare disease to advocating for greater awareness, Sarah offers a unique and inspiring perspective on what it means to live with Alpha-Mannosidosis. This conversation sheds light on the re ... 

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