Notas del episodio
Episode 10 – Finding Strength in Community
🎙️ Hosts: Erin Hubbard
🎤 Guest: Cyndi Frank
📅 Release Date: 10/07/2025
🔬 Topic: Resilience, Advocacy, and Rare Disease Awareness
🎧 Episode Overview
In this episode of These Kids Can’t Wait, host Erin Hubbard speaks with Cyndi Frank, a leading advocate in the Gaucher disease community. In recognition of Gaucher Disease Awareness Month, Cyndi shares her journey of raising awareness, connecting advocates, and building strong partnerships with pharmaceutical companies. Together, they discuss how collaboration, transparency, and communication between patients, advocates, and industry can drive meaningful progress in rare disease research and treatment.
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