Living with multiple sclerosis (MS)

Living with multiple sclerosis (MS)

by Mike Parker

Documentary Personal Journals

Season 1

treatment this week?

fingers crossed my next Ocrevus infusion will be this Tuesday, had quite a good week, Saturday Lisa and Me went to go and see an 80s tribute band. talking about my trip out on the scooter in the week, had a really good experience with an older chap being really polite. Kinda just a little update on how I'm doing as well. quick mention of the JustGiving for the skydive on the 29th October.

feeling very positive

it's been a good week. had a meeting with the mental health team, very good chat which has given me a lot of thoughts about how to help myself. Eleanor had a good service and now runs awesomely. real chance for me to get on to a course for Digital Marketing. I want to do a sky dive to raise money for the MS society, need to speak to the doctor first, but, if it's possible then I want to do it, chance of a lifetime if that happens.

gardening and the after effects of it

Firstly, oh what a mistake haha... I tried to record this episode live, done a whole 30 min episode, went to do the uploads and noticed I hadn't hit record, so here we are with a normal pre-recorded show. talking about my afternoon gardening and how it effected me, new acoustic padding on the walls in the studio and brief mention of my upcoming treatment.

having a chat about my week

talking about my week, bought a new chair to use while in the studio. little issue with hearing in my left ear (probably not MS), family BBQ and talking about the MS society walk next month.

show 50!!.. So proud to have reached this milestone.

a brief recap of my condition since show 1 up to today, explaining about a new issue that has literally only started within the hour before recording. Also talking about an issue that I had while out on my mobility scooter a couple of days ago.

I've not been very well

Just a quick show this week, I've not been very well. suffering with a saliva glad infection as well as possibly dealing with the well known gap between infusions.

let's talk cost of living

Totally different episode, I just had to get some thoughts out in regards to the cost of living. I will not talk individual companies but as a generalisation, All thoughts in this episode are my own opinion.

thoughts and talking about my 40th birthday

discussing my thoughts on information sharing within the NHS and other agencies. It was my 40th birthday this past week, so, I'm explaining what we've been doing... bowling and a family get together.

Social media and trolls

Discussing how I suffered Trolling online while doing a Live chat on a social media, also talking about how I've asked for some support with my mental health. This is such a different type of show and I personally loved every second of recording it. Internet Trolls should be more heavily dealt with by the social media companies in my opinion.

lets talk mobility aids

talking about mobility aids and trying to remove any stigma that some people have about using them, we need them and should be proud to use whatever we need to if it helps us carry on being us. also an update on me and quick update on the Website mikesmsjourney.com

2 of 7