Too Hot to Handle

Demystifying NMO & MOG by The Sumaira Foundation

Episode notes

Feeling the heat this summer?! People living with NMOSD/MS can experience sensitivity to temperature, particularly extremely hot or cold temperatures. In this episode, Chelsey chats with TSF ambassadors Julie Aldridge and Alexis (aka Lexi) Marta about their experiences living with NMOSD and managing temperature sensitivity. They cover:

  • Impact of heat on NMOSD symptoms aka Uhtoff's phenomenon

  • Heat-related symptoms vs relapse

  • Managing heat, especially on a hot summer day

  • Where to find at-no-cost cooling vests

  • Impact of cold on symptoms and how to manage

Keywords
painchronic painsummerheat