Today we are gong to hear from a member of our community in the UK, Clare Stacey, who was diagnosed with VEDS following her mother’s death when Clare was 14 years old. In the episode, she is going to share how her understanding of and interaction with her VEDS diagnosis has changed as she has gotten older and dealt with medical events of her own.

Find more information about VEDS, including support groups and medical webinars, at https://TheVEDSMovement.org.

If you would like to share your story with VEDS on this podcast, visit

https://staying-connected.blubrry.net/contact/

Links mentioned in the episode:

The Rare Disease Podcast 4 Medics: Not Just Hypermobility

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