In this episode we’re going to talk to Hugh Cox, a member of the Vascular Ehlers-Danlos Syndrome community diagnosed just in 2022. He was first misdiagnosed with a clotting disorder.

Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. You can also find information and resources through the John Ritter Foundation, johnritterfoundation.org

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events: