Episode 9 - A Conversation with G...

Episode 9 - A Conversation with Guest Host Aaron Blocker and Deborah Fowler

Bonafide HPP by Soft Bones, Inc.
E9
Oct 28, 2024
28:37

Episode notes

In this special episode, Aaron Blocker is guest hosting to discuss hypophosphatasia (HPP), a rare genetic bone disease that they live with. They interview Deborah Fowler, the founder of Soft Bones, a foundation that provides support, resources, and advocacy for those affected by HPP. Together, they explore the journey of living with HPP, advances in treatment, and the critical work Soft Bones is doing to raise awareness and provide hope to the HPP community. This conversation offers valuable insights for both patients and those looking to learn more about the condition.

Keywords

Soft Bones
hypophosphatasia
Rare Disease
Support
Advocacy