Rare Disorder Podcast

by NORDSA

NORDSA, the National Organization of Rare Disorders Student Association at the University of Alberta, focuses on topics concerning rare disorders and diseases. Whether it be raising awareness for them, advocating for research funding, or discussing the nitty-gritty of the medical system by which they survive, NORDSA is here to educate and to have fun doing it!
Medicine
Science

Podcast episodes

  • Season 1

  • RaresiesRule! With Joanne Paquette

    RaresiesRule! With Joanne Paquette

    S01 E01
    35:01

    Joanna Trieu (Director External NORDSA) interviews Joanne Paquette about her experience as a rare disease advocate. Topics, including pinstriped hospital pyjamas, opportunities for advocacy, and community support, are discussed in this riveting discussion. More information on Joanne can be found at https://raresiesrule.ca/ and more information on NORDSA can be found by following us on Instagram @nordsa_ualberta