Today we’re interviewing Eddie and Suzie, who are raising awareness of PAF (Pure Autonomic Failure), a rare condition that only around 180 people in the UK live with.

In this episode we discuss…

- What it’s like to live with a rare condition

- Setting up their own support group and the importance of a supportive network

- Going from caregiving to being cared for

- Travel insurance when you have a rare condition

- How the National Disability Card helps on days out and at theatres

- How the National Carers Card helps carers get recognition and assistance

💜 Join Suzie & Ed's PAF Support Group: https://www.facebook.com/groups/869025589357423

💙 Apply for the National Disability ...