Living Flexible - The Ups and Downs of Hypermobile Ehlers-Danlos Syndrome

In this episode, I interviewed Lucy, who was diagnosed with Ehlers-Danlos Syndrome in 6th grade. She talks about living with her condition, and the struggles she faces in athletics and with other people.

You'll hear about:

• The diagnostic process
• Navigating athletics with accommodations
• How people react to hearing about her EDS
• Invisible symptoms and struggles

You can find online support for EDS below:

• The Ehlers-Danlos Society - https://www.ehlers-danlos.com/
• EDS Awareness - https://www.chronicpainpartners.com/
• Connective Strength - https://www.connectivestrength.org/

Please subscribe, rate, and leave a review on your favorite podcast platform and share this episode with someone who needs to hear Lucy's story.

You can find the episode transcript in this Google Doc:

https://docs.google.com/document/d/1aadh8lRaW_cLh1JeWdTxn_DEGWbjVJls4KpCFk2z1fQ/edit?usp=sharing