Tony watched his granddad, his dad and both his uncles die of Huntington's disease, an incurable, hereditary condition. Then he took the test himself and it came back positive. This is the story of how he turned that into HD Livin, a charity supporting families affected by Huntington's and other neurological diseases across Devon and Cornwall. In this episode we cover: • What Huntington's disease is, and why it's often described as MND, Parkinson's and Alzheimer's in one • The 50% "coin toss" every child of a parent with Huntington's faces • Why specialist respite care cost his family £2,000 to £2,500 a week, and what happened when a care home couldn't cope • The 12 month genetic testing process, and how three siblings handled it in completely different ways • What it's like when symptoms finally start, and the mental health battle that comes w ...