In this episode, we chat with Jimmy who has Aarskog Syndrome. Listen to hear how he has had to cross borders to get the right medical help. This is also the first time Jimmy has spoken publicly about his condition so we are hugely honoured he spoke to us. Editing - Tom Campbell Music - Easy Lemon 30 Second by Kevin MacLeod is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Source: http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1200078 Artist: http://incompetech.com/
In this episode, we chat with Ejnar who has Aarskog Syndrome. Listen to hear how he has overcome challenges of not being believed and getting the right help and support. Plus we chat about his hopes for the future for children who are diagnosed with Aarskog. Editing - Tom Campbell Music - Easy Lemon 30 Second by Kevin MacLeod is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Source: http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1200078 Artist: http://incompetech.com/
In this episode, we chat with Debbie who is a mother to two boys with Aarskog Syndrome and she is a confirmed carrier of the FGD1 Gene. Listen to hear her story about getting the right medical advice and how she is affected as a carrier of Aarskog Syndrome. Editing - Tom Campbell Music - Easy Lemon 30 Second by Kevin MacLeod is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Source: http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1200078 Artist: http://incompetech.com/
In this episode, we chat with Velvet who is a mother to a son with Aarskog Syndrome. Listen to hear her story and advice for parents of a child with a rare disease. Editing - Tom Campbell Music - Easy Lemon 30 Second by Kevin MacLeod is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Source: http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1200078 Artist: http://incompetech.com/
In this episode, we chat with Shea who is a mother to a son with Aarskog Syndrome and she is a confirmed carrier of Aarskog. Listen to hear her story and advice for carriers of a rare genetic condition. Editing - Tom Campbell Music - Easy Lemon 30 Second by Kevin MacLeod is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Source: http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1200078 Artist: http://incompetech.com/