SPS UNSCRIPTED

SPS UNSCRIPTED

by L & M
Season 1
Don’t Forget to Press Pause… Travelling and Out & About
‘The one where Lindsay was developing a nasty strain of covid and M had to monopolise the airwaves’… L&M discuss the reality and practicalities of holidays and day trips with SPS. Discussions of personal experiences, trying to plan with the unpredictable nature and chronic fatigue of SPS whilst offering some tips as summer is now upon us. .
Episode:7 The Ever-Changing Day, Living with SPS
A very raw and open discussion between your hosts L&M. Stiff Person Syndrome being a spectrum disease has many faces. It can be difficult to navigate when it impacts upon daily life where you are unable to plan due to the unpredictability of the disease. As always L&M touch upon the seriousness of the topic but never fail to find joy and share laughter throughout. Thank you to all our listeners. Don’t forget to check out ‘Chorus of Voices’
Episode 6: So My Friend….. How are you, Really?
In this episode L&M discuss the waxing and waning of living with SPS, but more so your hosts are raw and open as they share the trying few weeks of health challenges and chronic fatigue which left both feeling rather shaken; physically, emotionally and psychologically. By diving a little more in-depth with a longer podcast (don’t forget you can stop and restart as you feel able) L&M touch upon how they have both coped and tried to revive and use multiple methods of self-care in an attempt to reestablish and regain some strength and focus. This is life with SPS, unscripted, an incredibly honest and soul baring episode.Please find us a n FB SPS UNSCRIPTED PODCAST / Instagram @spsunscriptedpodcast1Please see our recent social media posts asking you to join us as a collective voice representing SPS
Episode 5: Still Waters
This episode touches upon how it can feel when we are told “You don’t look sick”. It can be difficult to move forward, heal, and detach with love . We may often find ourselves stuck, ruminating and reliving the hurt. There is hope and strength within you to heal and learn to detach.
Episode 4: Hobbies, Interests & Finding Another Way
Join your hosts L&M as they discuss the importance of engaging in activities and hobbies to enable a fulfilling life particularly when facing health challenges. As always these friends combine laughter, honesty and hope.
Episode 3: Sleep, Rest & Relaxation
Join your hosts L&M as they share their own daily self-care routines to help with symptom management, preventing boom and bust cycles of fatigue and the importance of their sleep routines.
Personal Journey M :03
Join M as she discusses chronic fatigue in her personal journey and a how embarking upon a self-care journey continues to help in fatigue management and prevent booming and busting
Personal Journey: Lindsay E03
In this episode Lindsay shared her personal experience with chronic fatigue
Personal Journey M : 2
This episode is at the request of a listener who picked up upon M’s journey with vestibular and balance issues. Embarking upon self-advocacy leading to a road of recovery
Personal Journey- Lindsay L2
Lindsay continues her personal monologues as she discusses her diagnostic journey and living with SPS in the early years.
1 of 2