Episode notes

We return from winter break and are joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal trusted her instincts and advocated for a second opinion—one decision that ultimately led to an accurate MPNST diagnosis and life-saving care.

That diagnosis resulted in a permanent colostomy, a urostomy, rectum removal, and a partial hysterectomy. Crystal talks about navigating this new normal, adjusting to a different lifestyle, and processing the emotional and physical experience of such major surgeries.

She also shares how social media offered education and community during a time when she was searching Reddit and Instagram to learn how to live with a double ostomy.

Now, Crystal pays it forward by sharing her own tips, tricks, and enco ... 

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Keywords
sarcomasarcoma storiessarcoma foundation of americasfamalignant peripheral nerve sheath tumorMPNST