We're excited to announce, "Sarcoma Stories" a new podcast from SFA.
Sarcoma Stories is the only podcast highlighting the journey and experiences of people living and surviving sarcoma. Each episode will feature a guest sharing their sarcoma journey, resources they found valuable and more.
Search Sarcoma Stories on your favorite podcast platform and be sure to follow to get updates on our latest episodes.
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Join us as we speak with Katie Wintergerst, who shares her personal experience with synovial sarcoma. Katie discusses the importance of seeking multiple opinions at sarcoma centers to make informed treatment decisions and provides valuable insights into participating in early-phase clinical trials. We also explore her journey as a single parent of two young children while living with sarcoma, her impactful advocacy work, her leadership role in the Race to Cure Sarcoma Louisville, and the support she's found along the way. Tune in to hear Katie's powerful story and learn from her experiences. Stand Up To Sarcoma Gala: https://curesarcoma.org/ways-to-help/stand-up-to-sarcoma-gala/ Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/ Synovial Subtype: https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/ Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/ Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/ Sarcoma Clinical Trials: https://curesarcoma.org/support-resources/sarcoma-clinical-trials/ Take the Sarcoma Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/ Connect with Katie here: https://www.facebook.com/katie.kaiser.773 or https://www.instagram.com/katiewintergerst/ Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704
On this episode we speak with Jenny Sage, a parent of a pediatric sarcoma survivor, Gracie. Jenny shares her perspective on advocating for children with sarcoma and others in the sarcoma and pediatric cancer communities. We discuss supporting children and families through a sarcoma diagnosis, the importance of emotional processing, and ways to help others. Jenny’s Instagram: @jgoodmansagehttps://www.instagram.com/jgoodmansage/ Jenny’s LinkedIn: https://www.linkedin.com/in/jenny-goodman-sage-333200a4/ CIC-DUX4 Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/ Sarcoma Patient Experience Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/?fbclid=PAZXh0bgNhZW0CMTEAAaYWR9Zq2nOoOAxRVn6dJ78MeJ2nAVrq29fKMIGAcuToCKD2JxCQTLEbP4A_aem_5lsjjYo6Ug28apsTbN-mjw Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704 Caregiver Sarcoma Connect Facebook Group: https://www.facebook.com/groups/1342913339758774 Advocacy Weekend: https://curesarcoma.org/get-involved/sarcoma-advocacy/sarcoma-advocacy-weekend/ Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/ SFA Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/
Mike Cacioppo, diagnosed with osteosarcoma in 2021, shares his experience of being a part of the sarcoma community as well as the amputee community and how advocacy for both has become a part of his life. He also talks about parenting while navigating a sarcoma diagnosis and how he maintains an optimistic mindset through all of the challenges he's faced. Mike's Subtype: https://curesarcoma.org/sarcoma-subtypes/osteosarcoma/ Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704/ Mike's Instagram: https://www.instagram.com/mikec829/ RTCS Boston: https://curesarcoma.org/boston Sarcoma Survey: https://www.surveymonkey.com/r/SFASarcomaSurvey IRB Protocol ID 0686
On this episode, Maria shares the sarcoma journey of her daughter Aubrie, who was diagnosed with CIC-DUX4. Maria speaks about the diagnosis experience of a teenager, including having conversations about fertility preservation before starting chemo and ways she's honoring Aubrey after her passing. While working to fulfill her daughter's bucket list, Maria has also been the driver for helping SFA bring the Race to Cure Sarcoma to Austin, Texas for its inaugural Austin race on March 22nd, 2025. Content Warning: Death from sarcoma, death of a child. Aubrie's Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/ Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704 Caregiver Connect Facebook Group: https://www.facebook.com/groups/1342913339758774 RTCS Austin: https://secure3.convio.net/soa/site/TR/RacetoCureSarcoma/General?fr_id=1454&pg=entry All RTCS Locations: https://curesarcoma.org/race-to-cure-sarcoma/ Sarcoma Survey: https://www.surveymonkey.com/r/SFASarcomaSurvey IRB Protocol ID 0686
In this episode, we speak with the Brenneman family who lost their father and husband, David, 12 years ago. We discuss the care partner experience of navigating a spouse's sarcoma diagnosis while also raising young children and what it has been like for the family to find connection to David after his passing. The Brenneman family shares about how this experience has fit into their lives and evolved over the years and talk about their unique experience walking the Camino de Santiago to raise awareness and funds in support of the sarcoma community. Thank you to the Brenneman family for sharing their story and allowing us to be a small part of honoring David's legacy. content warning: death from sarcoma, death of a parent, death of a spouse AJ's Blog: https://www.200-miles-closer-to-dad.com/ David's Subtype: https://curesarcoma.org/sarcoma-subtypes/alveolar-rhabdomyosarcoma/ https://imermanangels.org Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704