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DSACO: Up for Discussion

DSACO: Up for Discussion

by Down Syndrome Association of Central Oklahoma

Non-Profit Parenting

Season 2

Advancing the Future of Down Syndrome: A Conversation with Michelle Sie Whitten

In this episode of DSACO: Up for Discussion, Sarah sits down with Michelle Sie Whitten, Co-Founder, President and CEO of the Global Down Syndrome Foundation. Michelle shares how GLOBAL is advancing research, improving healthcare and advocating for individuals with Down syndrome. They discuss the NIH INCLUDE Project, promising areas of research, the work of the Linda Crnic Institute and the Anna and John J. Sie Center, and the resources available to families, self-advocates and professionals. They also look ahead at the future of Down syndrome research and explore how families can help create meaningful change in their communities. In this episode: The mission of the Global Down Syndrome Foundation Why Down syndrome research matters The impact of the NIH INCLUDE Project Advancements in healthcare across the lifespan Resources and support available to families Current advocacy priorities and ways to get involved Hope for the future of the Down syndrome community Learn more: Global Down Syndrome Foundation Michelle Sie Whitten NIH INCLUDE Project Research and Medical Care Resources GLOBAL Medical Care Guidelines for Adults with Down Syndrome AAP Health Supervision for Children and Adolescents with Down Syndrome DSACO

Empowering Every Voice

Advocacy starts with one voice—but together, those voices create lasting change. In this episode of DSACO Up for Discussion, Sarah Soell sits down with Wanda Felty, Assistant Director and Community Leadership & Advocacy Coordinator at the Center for Learning and Leadership (CLL) at the University of Oklahoma Health Sciences Center, for an inspiring conversation about advocacy, leadership, and empowering individuals with disabilities and their families. Whether you're a parent just beginning your journey, a self-advocate, a professional, or someone passionate about inclusion, this episode is filled with practical advice, valuable resources, and encouragement to help you confidently navigate services and create meaningful change. In This Episode What advocacy really means—and why it matters Tips for navigating IEP meetings, healthcare, and disability services How families can build confidence when speaking up The importance of self-advocacy from childhood through adulthood An inside look at the Oklahoma LEND (Leadership Education in Neurodevelopmental and Related Disabilities) program How LEND develops future leaders, professionals, family advocates, and self-advocates The Guide to Community Services in Oklahoma and why it's an essential resource for families How organizations can work together to create more inclusive communities Advocacy at the policy level and how every voice can make a difference Preventing burnout while continuing to advocate for those you love Resources Mentioned • Oklahoma LEND Program: https://ouhsc.edu/thecenter/Projects/Training-and-Collaboration/OKLEND • Guide to Community Services in Oklahoma: https://ouhsc.edu/thecenter/Publications/Publication-Details/guide-to-community-services • Center for Learning and Leadership (CLL): https://ouhsc.edu/thecenter

Protecting Children & Strengthening Families with Joe Dorman

Every child deserves a safe, supportive environment where they can thrive. In this episode of DSACO: Up for Discussion, we're joined by Joe Dorman, CEO of the Child Advocacy Center, to discuss the vital work being done to protect children, support families, and strengthen communities across Oklahoma. Joe shares what child advocacy really means, the services the Child Advocacy Center provides, and how collaboration between organizations helps create better outcomes for children and families. We also talk about recognizing when a child may need support, common misconceptions about child advocacy, and ways community members can make a difference. Whether you're a parent, caregiver, educator, or community advocate, this conversation offers valuable insight into the importance of protecting and empowering children. In This Episode: The mission of the Child Advocacy Center What child advocacy means Services available for children and families Common misconceptions about child advocacy The importance of community partnerships Recognizing when a child may need support Ways to get involved and make an impact What's next for the Child Advocacy Center Helpful Links: Child Advocacy Center: https://cacok.com/ Register for the 2026 Down Syndrome Festival & 5K: https://dsfestivaland5k.com

Running for Inclusion: Mark Bravo on the 2026 Down Syndrome Festival & 5K

In this episode of DSACO: Up for Discussion, Sarah Soell sits down with longtime friend of DSACO, race ambassador, coach, and event emcee Mark Bravo to talk all things 2026 Down Syndrome Festival & 5K. Mark shares how he first became involved with DSACO, what keeps him coming back year after year, and why he believes this event has the power to change lives. Together, Sarah and Mark walk through everything you need to know before race day—from the 5K and 1-Mile Fun Run to the Awareness Walk and festival activities that bring thousands of people together in celebration of inclusion. Whether you're a seasoned runner, a first-time participant, a team captain, or simply someone looking to support an incredible cause, this episode will inspire you to join us on September 26 at the Myriad Botanical Gardens. In This Episode How Mark Bravo became involved with DSACO and the Festival & 5K Why this event impacts so many families and community members Tips for first-time 5K participants What to expect from the 1-Mile Fun Run and Awareness Walk Festival highlights and family-friendly activities How to participate through the Virtual 5K from anywhere Why everyone has a place at the Down Syndrome Festival & 5K Event Details Saturday, September 26, 2026 Myriad Botanical Gardens | Oklahoma City, OK Schedule 7:00–8:00 AM – Registration & Check-In 8:00 AM – 5K & 1-Mile Fun Run 9:45 AM – Awareness Walk 10:00 AM – Festival Begins 11:30 AM – Raffle Drawings Register Today Visit dsfestivaland5k.com to: Register for the 5K Sign up for the 1-Mile Fun Run Start or join a fundraising team Make a donation Learn more about the festival Connect with DSACO Website: dsaco.org Email: info@dsaco.org

Swim Safety with Wyatt from British Swim School

In this episode of DSACO: Up for Discussion, we sit down with Wyatt from British Swim School to talk all about swim safety, adaptive swim lessons, and the importance of water confidence for individuals with Down syndrome. As summer begins and families spend more time around pools, lakes, and water parks, this conversation is an important reminder that water safety can truly save lives. Wyatt shares practical tips for parents, discusses how swim lessons can be adapted for different learning styles, and explains why swimming is such an important life skill for self-advocates. You may remember Wyatt from our Spring Break Swim Camp with DSACO, and we were so excited to bring him onto the podcast to continue this important conversation! In this episode, we discuss: 💦 Why swim safety is especially important for individuals with Down syndrome 💦 Adaptive teaching techniques and building confidence in the water 💦 Safety skills every child should know 💦 How parents can reinforce water safety at home 💦 The lifelong benefits of swimming and water confidence Thank you to Wyatt and British Swim School for joining us and helping educate our community on such an important topic. 🎧 Listen wherever you get your podcasts! 🔗 Learn more about British Swim School: https://britishswimschool.com/central-okc-norman/ Be sure to share this episode with another family who could benefit from these important swim safety tips this summer!

Communication Is a Human Right

Communication is a human right, and on today’s episode of DSACO: Up for Discussion, we’re taking a closer look at the upcoming Inclusive Communication Conference. We’re joined by the individuals helping bring this meaningful event to life as we discuss the inspiration behind the conference, the importance of accessible and inclusive communication, and how creating spaces where everyone has a voice can make a lasting impact. Throughout this episode, we dive into how communication goes far beyond spoken words and why access to communication should be available to everyone. We also discuss who the conference is designed for, what attendees can expect throughout the event, and why these conversations are important for families, educators, professionals, self-advocates, and community members alike. The Inclusive Communication Conference is focused on building awareness, sharing resources, and providing practical tools that support inclusive learning and communication practices. This event creates opportunities to connect, learn from others, and continue growing a more inclusive community where every voice matters. Interested in attending? Learn more and register here: dsaco.org/icc And make sure you listen all the way through this episode because there’s a special discount code hidden in the podcast that you won’t want to miss!

Championing Inclusion with Grace Simpson | Special Olympics

In this episode, we sit down with Grace Simpson from Special Olympics to talk about the power of inclusion, advocacy, and community. We dive into what Down syndrome really means, break down common misconceptions, and highlight how programs like Special Olympics are creating meaningful opportunities for individuals with intellectual disabilities to thrive. What You’ll Learn What Special Olympics is and why it matters A simple, real-life understanding of Down syndrome Common myths vs. reality The impact of sports on confidence, connection, and growth Advice for families navigating a Down syndrome diagnosis Ways you can support and advocate in your community Get Involved: Down Syndrome Festival & 5K Join us for one of the most impactful events of the year — a day of celebration, awareness, and community. Register, donate, or learn more here: https://dsfestivaland5k.com Ways to participate: Run the 5K Join the Awareness Walk Create a team with friends, family, or coworkers Stay for the festival full of music, food, and activities Why This Matters Inclusion is essential. This episode is a reminder that every individual deserves to be seen, valued, and given opportunities to succeed. Follow along, share this episode, and continue supporting the Down syndrome community through awareness, education, and action.

Behind the Scenes With Our Producer!

Get an exclusive behind-the-scenes look at how DSACO: Up for Discussion comes to life. In this special episode, Executive Director Sarah Soell sits down with the podcast’s producer, Adie, to talk about everything that goes into creating each episode—from brainstorming ideas to hitting publish. Listeners will learn what a podcast producer actually does, how episodes are planned and recorded, and what it takes to keep each conversation aligned with DSACO’s mission. Adie also shares favorite moments, challenges, and what makes this podcast so meaningful to be a part of. This episode is perfect for anyone curious about podcast production, storytelling, and the work that happens behind the mic. In This Episode: What a podcast producer does behind the scenes The step-by-step process of creating an episode How topics and guests are selected What recording days really look like Challenges and favorite moments from producing How the podcast supports DSACO’s mission Special Feature: Learn how you or your business can support the podcast through sponsorship opportunities. Email us at info@dsaco.org Get Involved: Join us for the DSACO Cup Golf Tournament on May 4, 2026, at Rose Creek Golf Club! Register or become a sponsor: dsaco.org/golf Keep advocating, keep empowering, and keep educating!

AmeriCorps & Building Stronger Nonprofits

In this episode, we explore the powerful role AmeriCorps plays in supporting nonprofits and strengthening communities. Sarah is joined by representatives from AmeriCorps to break down how national service programs operate, what “capacity building” really means, and how organizations like DSACO benefit from these partnerships. We discuss how AmeriCorps differs from traditional volunteer programs, the types of service opportunities available, and how individuals can get involved. The conversation also highlights the real impact AmeriCorps members have on nonprofits, from expanding programs to building long-term sustainability. Listeners will gain insight into how AmeriCorps selects partner organizations, why supporting disability-focused nonprofits is so important, and what makes DSACO a meaningful service site. We also dive into the personal growth and leadership development AmeriCorps members experience through their service. This episode is a great listen for anyone interested in nonprofit work, advocacy, community impact, or getting involved in service programs. If you’re passionate about making a difference, this conversation will leave you inspired by the power of service and partnership. To learn more about AmeriCorps or how to get involved, visit their website or connect with local service opportunities. Links: https://www.rrccok.org

Voices of Love: Parents Sharing the Journey of Down Syndrome

n this special episode of DSACO: Up for Discussion, we sit down with an incredible panel of parents who share their experiences raising a loved one with Down syndrome. Each story is unique, filled with moments of growth, joy, and powerful perspective. Our panel opens up about what it was like when they first received their child’s diagnosis, the milestones that have meant the most, and the many ways their children continue to inspire and shape their families. They also share honest insights into common misconceptions about Down syndrome and what they wish others better understood. This conversation highlights the importance of community, support systems, and the beauty of celebrating every individual’s abilities. For parents who may be at the beginning of their journey, this episode offers encouragement, reassurance, and meaningful advice. In honor of World Down Syndrome Day (March 21), we also encourage everyone to join us in raising awareness by wearing silly or crazy socks and helping spread the message of inclusion. Whether you are a parent, family member, educator, or community supporter, this episode is a reminder of the impact of advocacy, acceptance, and celebrating every story. 💛 In This Episode: Real experiences from parents of children with Down syndrome Honest conversations about diagnosis, growth, and milestones Common misconceptions and how to challenge them The importance of community and support Advice for new and expecting parents Hopes and dreams for the future 🧦 Get Involved: Celebrate World Down Syndrome Day by rocking your crazy socks and helping spread awareness! Learn more or get involved at: dsaco.org/wdsd

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