"HOW TO PARENT A CHILD WITH DOWN'S", FEATURING AUTHOR JODI SAMUELS (1/2)
The Chromodiversity™ Podcast by My XXY | Chromodiversity™ Foundation
Episode notes
🟢 "YOUR CHILD IS A PERSON FIRST, NOT A MEDICAL CONDITION." In this first of two episodes, Jodi is brutally honest about the challenges she faced...
coming to terms with her daughter’s diagnosis of Down's syndrome ("Trisomy 21": 3 copies of chromosome 21 instead of the usual 2, thought to occur in 1 in 800 infants);
dealing with seemingly endless stream of negative information shortly after birth
and lack of positive information how children with Down's can live happy, increasingly healthy long lives.
You'll also hear about
how Jodi came to accept and embrace her daughter's differences and strengths;
her skepticism of "performative kindness" that can mask the absence of real, meaningful action;
and - facing the reality of socia ...Â
Keywords
jodi samuelsdisabilitychutzpah