Bonafide HPP

di Soft Bones, Inc.

No-Profit Educazione

Episode 9 - A Conversation with Guest Host Aaron Blocker and Deborah Fowler

In this special episode, Aaron Blocker is guest hosting to discuss hypophosphatasia (HPP), a rare genetic bone disease that they live with. They interview Deborah Fowler, the founder of Soft Bones, a foundation that provides support, resources, and advocacy for those affected by HPP. Together, they explore the journey of living with HPP, advances in treatment, and the critical work Soft Bones is doing to raise awareness and provide hope to the HPP community. This conversation offers valuable insights for both patients and those looking to learn more about the condition.

Episode 10 - A Conversation with Guest Host Cindy Reasor and Sue Krug

Join guest host Cindy Reasor as she chats with patient and Soft Bones Patient Liasion, Sue Krug.

Episode 12: A Taste of Mindfulness with Alison S.

💚 May is Mental Health Awareness Month. For many patients living with a rare disease, stress, anxiety, and other mental challenges can manifest in different ways. Join guest host Cindy Reasor as she interviews certified health coach and HPP patient Alison S. What is stress? How can we manage it? Why is it important? Tune in!

Episode 14: Mindfulness in the Face of ADHD, Anxiety, and Needle Phobia

ADHD, anxiety, and needle phobia, oh my! Join guest host Cindy Reasor as she interviews HPP caregiver and Licensed Professional Counselor (LPC) Christine McGowan. What is ADHD and anxiety? How is it diagnosed? When to seek professional help. Tune in to learn more. Follow us on social media: Instagram: @softboneshpp Facebook: Hypophosphatasia: The U.S. Soft Bones Foundation X: @SoftBonesHPP

Episode 15: Physical Therapy & HPP from a Patient and Provider Perspective

What happens when a seasoned physical therapist becomes the patient? For Adam, that question became deeply personal after being diagnosed with hypophosphatasia 4.5 years ago. As a physical therapist for over 27 years, Adam shares his perspective on the purpose of physical therapy and how it can help patients manage their care. In this episode, Adam joins guest host Cindy Reasor and shares what it’s like to navigate HPP from both sides of care and what every patient, caregiver, and provider should know. For more information on hypophosphatasia or our organization, please visit us at www.SoftBones.org. Follow us on social media: Instagram: @softboneshpp Facebook: Hypophosphatasia: The U.S. Soft Bones Foundation X: @SoftBonesHPP

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