Note sull'episodio
In this deeply moving conversation, Glenda shares her 11-year-old son’s journey with two brain cysts—a pineal gland cyst (~1.3 cm) and a cavum septum pellucidum (CSP) cyst (~6.2 cm)—and the uphill battle to be heard. Despite multiple MRIs and escalating neurological symptoms (vision loss/“upside-down” vision, severe headaches, anisocoria, behavioral episodes, leg tremors, learning and auditory processing challenges), several providers dismissed a cyst-symptom connection. Michael and Kelly reflect on their own experience, discuss hope, advocacy, and options, and encourage next steps with specialists who take symptomatic pineal cysts seriously.
Content note: pediatric medical distress, dismissal by providers.
If this episode resonates, share it with another family, leave a review, and visit pinealstories.com to submit your storyand find resources. Your voice helps shift the medical conversation.
💡 Resources & Links:
- Visit our website: pinealstories.com
- Learn more about pineal cyst symptoms and advocacy
- Share your story or contact us: pineal.stories@gmail.com
🎵 Credits:
Music: "What I Waited For" by Kikoru – Licensed via Epidemic Sound
📅 New episodes drop every Tuesday
Follow, rate, and review to help us reach more people — because the truth deserves a mic.