Note sull'episodio
Joanna Trieu (Director External NORDSA) interviews Joanne Paquette about her experience as a rare disease advocate. Topics, including pinstriped hospital pyjamas, opportunities for advocacy, and community support, are discussed in this riveting discussion. More information on Joanne can be found at https://raresiesrule.ca/ and more information on NORDSA can be found by following us on Instagram @nordsa_ualberta
Parole chiave
olliers diseaseraresies rulenordsa