Zebra Butter: Spreading Awareness for Rare Medical Conditions
A Rare Look at Rheumatic Heart Disease in the US
di Sree Nidhi Bethanapalli
In this episode, I interviewed Sophia, who was diagnosed with rheumatic heart disease. She talks about living with her condition, and her unique experiences in doctors' offices and in school. She talks about how she was diagnosed, testing accommodations, questions she gets asked, and limits she overcame. You can find online support for rheumatic heart disease below: World Heart Federation - https://world-heart-federation.org/our-impact/policy-advocacy/global-advocacy/rheumatic-heart-disease/ Heart Foundation - https://www.heartfoundation.org.nz/your-heart/heart-conditions/rheumatic-heart-disease Please subscribe, rate, and leave a review on your favorite podcast platform and share this episode with someone who needs to hear Sophia's story!
In this episode, I interviewed Lucy, who was diagnosed with Ehlers-Danlos Syndrome in 6th grade. She talks about living with her condition, and the struggles she faces in athletics and with other people. You'll hear about: The diagnostic process Navigating athletics with accommodations How people react to hearing about her EDS Invisible symptoms and struggles You can find online support for EDS below: The Ehlers-Danlos Society - https://www.ehlers-danlos.com/ EDS Awareness - https://www.chronicpainpartners.com/ Connective Strength - https://www.connectivestrength.org/ Please subscribe, rate, and leave a review on your favorite podcast platform and share this episode with someone who needs to hear Lucy's story. You can find the episode transcript in this Google Doc: https://docs.google.com/document/d/1aadh8lRaW_cLh1JeWdTxn_DEGWbjVJls4KpCFk2z1fQ/edit?usp=sharing