AACPDM Podcast

AACPDM Podcast

di AACPDM
EducazioneSalute & Benessere
Stagione 1

Fireside chat: Finances, Policy, and Investment in Membership of AACDPM

Today have the first of our Fireside Chat series -- a chance to learn more about the Academy and the people who lead it. Act 1: we talk with Bill Oppenheim, current Historian for the Board of Directors and discuss some of the historical challenges that brought about our creation of investment funds. Act 2: Current treasurer Mike Healy and secretary Angela Shierk discuss their roles around Academy finances and policies. Act 3: Research chair Sam Nemanich discusses this year's mentored research grant call. https://www.aacpdm.org/professional-opportunities/grants Please send your comments and questions to info@aacpdm.org; our next Fireside Chat will be in a few weeks!
S1 · E11
1 apr 2026
48:59

Cerebral Palsy Awareness Day 2026

Bonus
March 25 is Cerebral Palsy Awareness Day every year. This year we celebrate 20 years of this nationally recognized day of awareness and advocacy.
S1
25 mar 2026
5:01

From the Archives of the AACPDM village: Dr. Charlene Butler interviewed by Jen Lyman

Now open for registration -- the 2026 Spring Symposium! https://www.aacpdm.org/events/2026-spring-symposium Learn everything we know about muscle in cerebral palsy from basic science through clinical translation. Today's main interview is with Dr. Charlene Butler, President of AACPDM in 1995. Her passion for evidence based medicine and the importance of mobility access is evident in this conversation with Jen Lyman. Write to us at info@aacpdm.org to let us know your comments, questions and ideas. Next week is a Fireside Chat with our Secretary Angela Shierk and Treasurer Michael Healy -- so it's the perfect time to pose a question!
S1 · E10
19 mar 2026
40:25

From the Archives of the AACPDM village: Dr. Helen Horstmann interviewed by Jen Lyman

In this episode we highlight the contributions and career of Dr. Helen Horstmann, Orthopedic Surgeon and President of AACPDM in 1994. She shares stories of friendship, career growth, and how she balanced family in her roles. Enjoy this conversation! Other notes from the show: You can catch up on several topic areas presented at the Oceania Academy Biennial meeting at https://researchworks.net. The team put together a large number of interviews and discussions on topics that were included in keynotes, education sessions, and talks. https://www.aacpdm.org/professional-opportunities/ecourses/2026-spina-bifida-ecourse The Spina Bifida eCourse is available through the end of the month. Learn more about the Myelomeningocele Functional Classification (MMFC) from Drs. Vineeta Swaroop, Jill Larson, and Ana-Marie Rojas. Don't forget to renew or join to take full advantage of all member benefits!
S1 · E9
12 mar 2026
54:36

Duncan Wyeth's 80th Birthday and the Impact of Adapted Sports

We are so lucky to have an interview in this episode of Duncan Wyeth, completed by Dr. Ed Hurvitz. Duncan and Ed discuss life, sports, advocacy, work and the power of inclusion in sports. Since 2000, the academy has had an award named after Duncan (https://www.aacpdm.org/professional-opportunities/annual-awards/duncan-wyeth-award). This award is presented to an individual who demonstrates outstanding participation in or promotion of sports and recreation and serves as a role model for people with disabilities. The award is named after Mr. Duncan Wyeth for his passion for life and for encouraging people with disabilities of all ages to pursue interests and dreams based on their abilities and not to be limited by their disabilities. Duncan is an active advocate in his local community, nationally and internationally. His enthusiasm for life, sports, and recreation is contagious and inspirational. We also have a chance to hear commentary from Director at Large Gavin Colquitt. Gavin has been both an active member of the Adaptive Sports and Recreation Committee and now Special Interest Group, and now serves as liaison to that committee. The AACPDM wishes Duncan a very happy 80th birthday! Thank you for sharing your story and for all of your advocacy.
S1 · E8
3 mar 2026
1:08:25

Bonus discussion on technology articles

Bonus
We are grateful to have a chance to speak with Dr. Matthew Amadeo, one of the Technology SIG contributors to the education session at the 2025 annual meeting. In this episode, he chats with Theresa Moulton about 2 of the articles that were discussed during that session. Lim O, Kim Y, Park C. Preliminary Effects of Extended Reality-Based Rehabilitation on Gross Motor Function, Balance, and Psychosocial Health in Children with Cerebral Palsy. Bioengineering (Basel). 2025 Jul 18;12(7):779. doi: 10.3390/bioengineering12070779. PMID: 40722471; PMCID: PMC12293000. https://pmc.ncbi.nlm.nih.gov/articles/PMC12293000/ K. A. Ingraham et al., "Quantifying Joystick Interactions and Movement Patterns of Toddlers With Disabilities Using Powered Mobility With an Instrumented Explorer Mini," in IEEE Transactions on Neural Systems and Rehabilitation Engineering, vol. 33, pp. 431-440, 2025, doi: 10.1109/TNSRE.2025.3528454 https://ieeexplore.ieee.org/document/10839087
S1
1 mar 2026
32:56

Getting to know the Technology Special Interest Group

Today we catch up with leadership from the Technology Special Interest Group, or “SIG”. Drs. Anna McCormick and Sally Evans share context for how the SIG came to be. Dr. Hana Alazem is this year's Chair of the SIG and shares exciting plans ahead for the year. You can learn more about SIGs and. how to join on our website: https://www.aacpdm.org/about-us/aacpdm-special-interest-groups-sigs. We'd love to hear from you! Write to info@aacpdm.org to share your ideas, ask questions, and give feedback about the podcast.
S1 · E7
23 feb 2026
36:34

From the Archives: Dr. Jim Gage, interviewed by Jen Lyman and comments from Drs. Tom Novacheck and Sarah Winter

In this replay from the AACPDM Village, we join past Community Council Chair Jen Lyman interviewing Past President Dr. Jim Gage. Commentary is also provided by Past Presidents Sarah Winter and Tom Novacheck. The Village of the AACPDM was a project of the Diamond Jubilee meeting. Contributors to the project included: 2021 Scientific co-chairs Anna McCormick and Julie Sees; Communications committee representatives Kristie Bjornson, Ginny Paleg, and Sruthi Thomas; Historian Bill Oppenheim; Past President Deb Gaebler, Producer Gregory Tilton and Host Jen Lyman; supported by AACPDM staff (Tamara Wagester, Erin Freimark, Erin Brewster). Also mentioned in this podcast are AACPDM membership, https://www.aacpdm.org/membership, and the eCourse on the Myelomeningocele Functional Classification (MMFC) led by Drs. Vineeta T. Swaroop, MD, Jill E. Larson, MD, and Ana-Marie Rojas, MD. https://www.aacpdm.org/professional-opportunities/ecourses/2026-spina-bifida-ecourse Do you have a question or wish to make a comment on the podcast? In the coming episodes we'll be hosting some 'Fireside Chats' - a way to learn more about the functioning of the academy, and get to know some of the leaders and staff that support the mission. Email us your questions/comments to info@aacpdm.org -- in text or send a short audio message that we can play on the podcast!
S1 · E6
16 feb 2026
31:15

Highlights from the Lifespan Care Committee Journal Article Digest

In today’s show, Director at Large Caitlin Cassidy discusses two journal articles with members of the Lifespan Care Committee: Prue Morgan, Majula Manikandan, and Cristina Sarmiento. https://www.aacpdm.org/publications/lifespan-journal-digest The Lifespan Committee identified 10 great articles in 2025, listed below. The full list of references identified in 2025 is below. Andreopoulou G, Meharry JB, Jagadamma KC, van der Linden ML. Physical activity and exercise interventions in adults with cerebral palsy: a systematic review of quantitative and qualitative studies. Disabil Rehabil. 2025 May;47(9):2170-2184. van Rijssen IM, Gorter JW, Visser-Meily JM, Konijnenbelt M, van Driel M, van Drunen MG, Verschuren O. The 24-hour physical activities in adults with cerebral palsy and their adherence to the 24-hour movement guideline. Archives of physical medicine and rehabilitation. 2025 May 1;106(5):696-703. Trinh A, Fremion E, Bhathena S, Munns CF, Morgan P, Whitney DG, Gillick B, Zacharin M, Fehlings D, Vincent AJ, Milat F. Prevalence of and risk factors for osteoporosis and fragility fracture in adults with cerebral palsy: A systematic review. Dev Med Child Neurol. 2025 May;67(5):563-571. Sarmiento CA, Gannotti M, Cohen J, Hurvitz E. Priority setting for multicenter research among adults with cerebral palsy: a qualitative study. Disabil Rehabil. 2025 Oct;47(20):5307-5318. Ryan JM, Burke J, Byrne R, Capellari E, Harvey A, O'Connell NE, Omichinski D, Rodby-Bousquet E, Peterson M; Adult CP Clinical Practice Guideline Working Group. Pain in adults with cerebral palsy: A systematic review. Dev Med Child Neurol. 2025 Jul;67(7):854-874. van Rijssen IM, Gorter JW, Visser-Meily JMA, Sommers-Spijkerman M, Konijnenbelt M, van Driel M, Verschuren O. Sleep and physical activity: the experiences of adults with cerebral palsy and recommendations for clinical practice. Disabil Rehabil. 2025 Nov;47(23):6189-6197. Bailes AF, Noritz GH, Wyeth DO, Lucas EJ, Bates EB, Azizi H, Sarmiento CA, Thorpe DE, Nichols SA, Kreschmer J, Wisniewski S, Gannotti M. Multi-center improvement in screening for pain that affects activities in adults with cerebral palsy. Disabil Health J. 2025 Oct;18(4):101911. Petranovich CL, Sarmiento CA, Glaros C, Friedman H, Brenner LA, Dorsey Holliman B. A qualitative study of the social and emotional needs of adults with cerebral palsy: "it's a terrible gap". Disabil Rehabil. 2025 Dec;47(25):6655-6662. Esterley M, Krach LE, Pederson K, et al. Fall experiences of ambulatory children and adults with cerebral palsy: A qualitative study using thematic content analysis. Dev Med Child Neurol. Published online August 21, 2025. Smith, K. J., Burke, J., Lawrence, R., Oputa, E., & Bailey, R. (2025). The experience of cerebral palsy stigma amongst adults living in the UK and Ireland: A qualitative co-designed project. PLOS ONE, 20(9), e0331562.
S1 · E5
9 feb 2026
38:02

From the Archives: Dr. Murray Goldstein is interviewed by Jen Lyman, with new commentary by Dr. Eileen Fowler

In this replay from the AACPDM Village, we join past Community Council Chair Jen Lyman interviewing trailblazer Dr. Murray Goldstein. Commentary is also provided by Past President and 2025 Lifetime Achievement Award Winner Eileen Fowler. The Village of the AACPDM was a project of the Diamond Jubilee meeting. Contributors to the project included: 2021 Scientific co-chairs Anna McCormick and Julie Sees; Communications committee representatives Kristie Bjornson, Ginny Paleg, and Sruthi Thomas; Historian Bill Oppenheim; Past President Deb Gaebler, Producer Gregory Tilton and Host Jen Lyman; supported by AACPDM staff (Tamara Wagester, Erin Freimark, Erin Brewster). Also mentioned in this podcast are the AACPDM Research Grants: https://www.aacpdm.org/professional-opportunities/grants, and the eCourse on the Myelomeningocele Functional Classification (MMFC) led by Drs. Vineeta T. Swaroop, MD, Jill E. Larson, MD, and Ana-Marie Rojas, MD. https://www.aacpdm.org/professional-opportunities/ecourses/2026-spina-bifida-ecourse
S1 · E4
3 feb 2026
28:13
2 di 3