Episode 1 – Our Mission, Our Vision, Our Voice

Welcome to the Cure HSPB8 Podcast. In this inaugural episode, we share how and why Cure HSPB8 came to be — and what drives our mission to improve the lives of everyone affected by HSPB8 Myopathy. You’ll hear about the challenges of diagnosing and treating this ultrarare disease, our strategic goals, and how we’re building a global community around hope, science, and advocacy. Whether you're newly diagnosed or a seasoned researcher, this series will inform, connect, and inspire.