"Dazzling Zebras" with Professor Lara Bloom, Pres. & CEO of The Ehlers-Danlos Society
The Chromodiversity™ Podcast di My XXY | Chromodiversity™ Foundation
Note sull'episodio
🟢 "Don't ever underestimate what even 5 minutes of just listening and validating someone's experience can lead to (...). It is the best gift (a doctor) can give any patient."
Historically seen as a rare genetic difference of little interest to medical professionals - taught to "look for horses, not zebras" - Ehlers-Danlos Syndrome (EDS) may be be far more common than previously thought, particularly in its 14th Hypermobility (HSD) form . It is increasingly understood not only to result not only in physical challenges but also potentially neurodiversity like Autism and ADHD.
Fortunately, thanks to improved classification of symptoms and better awareness of its wide variability, EDS and HSD are starting to appear on the radar of doctors and diagnosis is increasing.
This matters, because although treatments are st ...