What is Profound Autism?

Simply stated, people with profound autism require lifetime, 24/7 care. The definition of autism has evolved over the years, creating an increasingly heterogeneous spectrum. While the entire spectrum deserves recognition and support, profound autism is a term intended to provide clarification about autistic people who:

• Require 24/7 care from an adult caregiver throughout their lives;

And also:

• Present with an IQ below 50;
• or have minimal or no language.

Based on previous work by the Lancet Commission[1] published in 2021, the Centers for Disease Control released their first prevalence study ...