Neeley Heilman - The Heart and Hu...

Neeley Heilman - The Heart and Humor of a Champion

Putting a Face (and Voice) with Disability por Jillian Heilman
T1 · E1
20 oct 2022
18:07

Notas del episodio

As we approach October and celebrate all the Fall festivities, we also celebrate National Invisible Disabilities Month. In honor of this, I have chosen Neeley Heilman as the first podcast I share. Neeley is not only my daughter, but she is also an amazing young woman diagnosed with multiple invisible disabilities. She took some time earlier this year to share her experiences with my RCDS class and I am now happy to share this podcast with all of you at the Halle Grace Foundation.

Neeley is a UCONN college student who is diagnosed with primary immunodeficiency, Ehlers Danlos, and dysautonomia. She shares with us her journey of coping with chronic medical conditions as a young adult. She touches on transitioning to full responsibility for her medical issues as she reaches adulthood, as well as touches on dating and school issues associated with her diagnosis.

You can learn a bit more about Neeley's story in her blog post, Heart of a Champion

Palabras clave

ehlers danlos
pots
college