Notas del episodio
Lily Collison and Professor Jennifer Ryan discuss the Cerebral Palsy Programme of Excellence, a five-year initiative that is improving care for those with cerebral palsy in Ireland.
The Programme of Excellence is advancing a national register and advocacy group, in addition to supporting the development of a coordinated, evidence-based approach to care and research.
Lily Collison co-founded the Cerebral Palsy Programme of Excellence and serves on its Steering Group.
Jennifer Ryan is one of the three leads of the Cerebral Palsy Programme of Excellence, with a particular focus on CP in adulthood. She is also the Director of the CP-Life Research Centre at the Royal College of Surgeons Ireland.
Junior doctor Beth Mallen joins us for the digest segment.
Archival clip during introduction: Then-Minister for Health, Mary Harney, discussing the Irish health system in a Progressive Democrats podcast.
Further Reading:
- https://irishcpprogramme.ie/
- https://cpresearchireland.eu/wp-content/uploads/2026/02/Transition-Research-Policy-Brief.pdf
- https://www.irishtimes.com/health/your-wellness/2024/07/04/adults-with-cerebral-palsy-in-ireland-face-a-lifelong-battle-for-support/
- https://thecurrency.news/articles/153955/lily-collison-how-one-familys-medical-crisis-became-the-inspiration-for-a-pledge-to-give-cerebral-palsy-sufferers-better-care/
- https://cpresearchireland.eu/wp-content/uploads/2024/04/CP-Life-Submission-to-Green-Paper-on-Disability-Reform.pdf
- https://cpresearchireland.eu/wp-content/uploads/2023/05/HRB-study-research-brief-1.pdf
- Another podcast that may of interest: https://80000hours.org/podcast/episodes/rachel-glennerster-market-shaping-incentives/