Episode #36 | When Disaster Strik...

Episode #36 | When Disaster Strikes: Emergency Planning for People with Disabilities

Demystifying NMO & MOG por The Sumaira Foundation
T4 · E8
3 jul 2024
36:41

Notas del episodio

In this episode, we discuss emergency preparedness and inclusivity with our guest, Brian Kosczuk, a second-generation paramedic and Pennsylvania EMS Educator of the Year.

Brian shares how living with a rare disease, myositis, and being a cardiac arrest survivor have allowed him to see different perspectives and how that shapes his role as a first responder, educator, and advocate.

Brian also discusses the challenges and solutions for ensuring emergency alerts and responses are accessible to people with disabilities. From adaptive technologies to the role of local emergency managers in accommodating specific needs, he provides valuable insights into making emergency services more inclusive.

Tune in as he gets us thinking about how to prepare for the worst.

ABOUT US:

The Demystifying NMO and MOG podcast is a Sumaira Foundation (TSF) project and

was made possible with the generous support of Genentech.

SOCIAL & WEBSITE:

Brian Kosczuk

LinkedIn - https://tinyurl.com/2he45j6n

Demystifying NMO podcast

Instagram - www.instagram.com/demystifying_nmomog

Twitter - twitter.com/DemystifyingNMO

The Sumaira Foundation

Website - www.sumairafoundation.org

Facebook - www.facebook.com/TheSumairaFoundation

Voices of NMO & MOG - www.sumairafoundation.org/awareness/voices-of-nmo/

ADDITIONAL LINKS

Preparing for Disaster for People with Disabilities and Other Special Needs

(FEMA and the American Red Cross)

https://tinyurl.com/ycjpxga2

People with Disabilities (U.S. Dept. of Homeland Security) https://www.ready.gov/disability

Disability and Health Emergency Preparedness (CDC)

https://tinyurl.com/yg73h3uu

SUPPORT THE PODCAST

Donate to Illuminate

https://www.sumairafoundation.org/advocacy/donate/

CREDITS:

Producer & Host - Brian Dawson

Music - Denys Kyshchuk from Pixabay

Palabras clave

autoimmune disease
neuromyelitis optica
NMOSD
invisible symptoms
patient
quality of life
chronic illness
caregiver
patient advocate
neuroimmunology
NMO
neuroscience
neurology
medication
communication
mog
clinician
lifestyle
community
mogad
sumaira foundation
tsf
resilience
ada
disability
rare disease
social determinants of health
Emergency Preparedness
Disability Preparedness
CPR
First Aid
First Responder
Paramedic
Emergency Management
Accessibility
Emergency Respoonse
EMS
emergency planning
myositis