Living With a Rare Brain Disease,...
Living With a Rare Brain Disease, Brain Surgery, and Becoming an Advocate with Linda Fuchser

Curveballs and Lemonade por Command Creative Studios

Notas del episodio

What would you do if a routine trip to the emergency room revealed a rare brain disease you never knew you had?

In this episode of Curveballs and Lemonade, Judy Kogan sits down with Linda Fuchser to share her incredible journey living with cerebral cavernous malformation (CCM), a rare neurological disease that causes abnormal blood vessels in the brain, brainstem, and spinal cord.

Linda discusses her accidental diagnosis after a brain bleed, undergoing brain surgery, discovering she carries the common Hispanic genetic mutation associated with CCM1, and learning to navigate life with multiple lesions throughout her brain and brainstem. She opens up about recovery, depression, cognitive challenges, family dynamics, and the uncertainty that comes with living with a rare disease.

Most importantly, Linda shares how she transformed he ... 

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Palabras clave
Linda Fuchsercavernous malformationcerebral cavernousmalformationCCMCCM1rare brain diseasebrain surgerybrain bleedneurological disorder