In this episode, Wes Michael shares the story behind founding Rare Patient Voice, how it connects patients with researchers, and the future of patient-centered healthcare. Discover how patient voices are shaping medical research and treatment development.

You will further discover:

• The origin story of Rare Patient Voice
• How patient panels are built and used in research
• The importance of listening to diverse patient voices
• Future directions for global patient engagement
• The role of technology and social media in patient recruitment
• Challenges and frustrations in patient research participation
• The impact of patient feedback on drug development
• The importance of inclusivity in patient research
• Wes Michael's personal motivation and experiences
• The merger with Kon ...