A Family’s Fight for Seizure Freedom
The CortiCare Podcast por CortiCare
Notas del episodio
Some stories stay with you long after the conversation ends.
In this episode of The CortiCare Podcast, Brad Beauchamp sits down with Ty, Lisa, and Charlie O’Connor to share the reality of navigating a rare genetic epilepsy diagnosis, years of seizures, hospital stays, clinical trials, surgeries, and the constant search for answers.
Charlie is one of only a handful of children in the world living with a rare GABRA2 variant. His journey has included more than 30 medications, EEG monitoring, infantile spasms, ketogenic therapy, brain surgery, VNS therapy, and breakthrough moments that gave their family hope again.
But this episode is about more than medicine.
It is about advocacy. Community. Choosing joy in the middle of uncertainty. And what it means to keep moving forward even when there is no clear roadmap.
The con ...